"Doh-brey-ah oo-trah," we greeted each other, practicing our Russian. Good morning.
It was a bitingly cold November day, a Russian public holiday. Soldiers carrying red flags marched up the street outside our seven-story hotel in Ivanovo. Unlike the contemporary Cosmos Hotel in Moscow, where we'd stayed the night before, the Sovietskya hotel was built in the 1950s and hadn't been updated since. The cavernous lobby, where we waited for the translators, was paneled in honey-colored wood, and empty except for the check-in desk, a pay phone, and a green sofa so mid-century modern it was trendy again. An art nouveau chandelier overhead had burned out. Even the air smelled vintage.
"Spa-see-ba," we practiced. Thank you.
The day before, we'd been in Moscow, touring the city, visiting the
Kremlin and Red Square, shivering in the sub-zero wind gusts in front
of St. Basil's Cathedral to have our pictures taken. For lunch, we
ate at Sbarro's pizzeria in what once had been an enormous state
department store in Soviet times, but now was an upscale mall. I was
surprised to see French fries on the menu, learning over the next
several days that French fries are a staple of the Russian diet,
served everywhere. Another surprise: toilet paper is not provided in
Russian public bathrooms. I had to carry my own supply in my purse.
Raw-cheeked from the cold and weary from sightseeing, we happily
boarded a van for a six-hour drive east to Ivanovo, through old-world
villages and magnificent birch forests. My travel companions—all in
their 40s and 50s—were friendly and fun to be around. Most had been
to Ivanovo before; some, like Carol, several times.
"I keep coming back," she said. "I miss the kids."
Everyone on the team who had signed up for the trip to visit
Orphanage #1 in Ivanovo had done so for unselfish reasons—to cheer
up the children, to make a difference in young lives, to be in
mission to others. I was there because when our church mailed us a
form asking for help with its programs, I joked to my husband, "Well,
I could either donate $20 to the church's operating fund or go to
Russia."
"Okay," Steve said.
"Okay what? I can go to Russia?"
"Sure."
"But who would watch the boys?"
"I'll take off work," he said. "We'll be fine."
This is crazy, I thought, checking the "Ivanovo
Orphanage Mission Team" box on the form, my head filling with
images of Imperial Easter eggs, onion-domed churches and Byzantine
art. I can't just take off to Russia for ten days.
I couldn't have known then how broken I would be by the time we
left; how the impulsive act of checking that little box would be the
first step in putting me back together.
We were paired with our very own Russian translators, all of them
women in their early 20s, all of them wearing stiletto boots despite
the thin layer of ice on the ground.
Olga mothered me from the start, though I was ten years older.
"Where is your hat?" she scolded in heavily accented
English before we left the hotel. She had a round, cherubic face,
limp brown hair, and wore the same two sweaters—light blue and
beige—throughout the week. Clothes are so expensive in Russia that
people wear them over and over between washings.
"It can get smelly sometimes," Jan, a team member, warned
those of us who were new. "Especially in the orphanage. It gets
really stuffy in the winter."
The 15 of us—team members and translators, and Anya, our petite,
briskly efficient guide—piled into a van for a ten-minute drive to
a Russian Orthodox Church to attend Sunday services.
The towering red-bricked cathedral with high arched windows,
scalloped cornices and three onion domes topped with metal crosses
took my breath away. Congregants, the majority of them elderly ladies
in long coats and head scarves carrying tote bags, hurried in and out
of the massive double doors. I covered my own head with a floral
scarf.
There were no pews inside the church, only a circular, high soaring
space with an altar in the middle. Glittering icons of Mary with baby
Jesus and religious scenes decorated the walls. Tables around the
room were weighed down with hundreds of lit votives. A priest in
ornate robes, and several nuns, chanted and sang in Russian, their
voices echoing. People in family groups stood in silence.
At first I thought we'd missed part of the service, but Olga quietly
explained that it would go on for hours, with people coming and
going. The women bustled around the sanctuary, collecting scraps of
paper from worshippers, delivering them to the nuns.
"Written prayers," Olga whispered.
There is something about the grandeur of a centuries-old
cathedral—the rituals, the incense-scented air, the carvings and
stained glass—that moves me, that makes God seem closer. Thousands
of miles from home, listening to a sermon in a language I didn't
understand, with little Russian ladies scurrying around me, the anger
I felt toward God, and the universe, and cancer—and the guilt I
carried inside—began to ease.
My mother passed away three months before I left for Russia, and
between the time she was diagnosed with lung cancer and died—just
five months—we spoke of death only once.
“Isn’t
it better to go suddenly?” she asked tearfully. “Isn’t it
better not to know?”
“No!”
I said.
At
the time I was thinking of my grandmother who had died suddenly,
giving me no chance to say goodbye. Knowing is better, I told
myself. I can prepare. I can say what I have to say. Turns out, Mom
was right. Sudden is better.
What
did I think we were going to talk about? Her fears? She kept them to
herself. Relieve my conscience? There was nothing to resolve.
Everything that I’d ever wanted to say to Mom had been said.
Talking about the past now made her cry. Making funeral plans meant
that we had given up, so we didn’t talk about that either. All
there was to talk about were her appointments and treatments, the
only certain things.
A
round of radiation caused Mom's hair to fall out and I'd offered to
shave my head in solidarity. “Don’t you dare!” she said.
The
floral scarf I wore in the Russian church was hers.
The sermon was
still going on when we left thirty minutes later. After a short
drive, we pulled up to Orphanage #1, a plain two-story tan-painted
building. The door flew open and children ran out, older ones
throwing their arms around team members who had come before, younger
children hanging back, shy. I felt shy myself, stepping down from the
van, overwhelmed, uncertain how to act.
In the common room, where all the kids were gathered, Russ, one of
the two guys on the team—Scott was the other—led the group in a
simple sing-along in English. Afterwards, I had a chance to talk to
Dima, an 11-year-old boy with brown hair and eyes, and a sweet smile.
The conversation stumbled at first, as we got accustomed to speaking
through Olga, but before long Dima was telling me about school and
his favorite sport (soccer) and asking me about life in America. Too
soon it was time to go, and as the team stood in the hall, saying our
good-byes, Dima clung to me like he never wanted me to go, and I
looked over his head, blinking to keep tears from falling.
Lunch was at B-mart, a department store with a cafeteria-style
restaurant inside. Along with the ubiquitous French fries, the
self-serve buffet featured borsch, potato salad and sausages.
Eyeing a pan of flat things in a sauce labeled "cutlet," I
asked the woman behind the counter what kind of meat it was. She
shook her head, not understanding, so I called Anya over.
"What kind of meat is this?" I asked.
"It's a cutlet," she said.
"Is it beef? Pork?" I asked, conscious of the line getting
longer behind me
Anya shrugged. "It's joost meat."
Resigned, I ladled some on my plate. (It tasted like chicken.)
An old, gloomy looking apartment building was our next stop. Two
17-year-old female graduates of the orphanage lived there. In Russia,
children are forced out of the orphanages at 14, and, if they are
lucky, placed in government-subsidized apartments with periodic
visits from a "house parent." Essentially adults, they are
expected to shop for groceries, do their laundry and cook for
themselves, get a job or attend a tech school or, if their grades are
high enough, go to college.
I would have been appalled at the rundown condition of the apartment
building if it were any different from the hundreds of other dreary
apartment buildings in the city. The stairs to the second floor were
covered in moldering trash and paint was chipping off the walls.
Yuliya's and Nastya's apartment, however, was clean and tidy. The
girls flitted around the tiny space, which I could tell they were
proud of, serving tea and store-bought cookies. Being motherless
myself, you'd think I'd be able to relate to these girls, but the
visit was awkward because of the language barrier, and because I
didn't know what to say to teenagers who had lost so much, and who
were so childlike and hard-edged at the same time.
After leaving the apartment, we met the girls and a dozen more
graduates at a nearby pizza place with a party room upstairs—a sort
of shabby Russian Chuck-E-Cheese—with cartoon characters painted on
the walls and coin-operated video games. A bizarre place to bring
teenagers who had stopped being children years ago, but Anya had
chosen the location.
The seven team members and our translators split up among the
graduates, and thus began ninety excruciating minutes—I secretly
checked my watch—of conversing with four teen girls who looked as
though they'd rather be anywhere else than sitting here answering my
questions—"What are you studying in school?" "Do you
have a boyfriend?"—through an exhausted translator, who, for
all I knew, could have been telling them, "Sorry you got stuck
at this table. It's almost over."
Back in the hotel room I shared with Carol, alone for a moment, I
began to cry. What am I doing here? I can't help these
children. I felt completely inadequate to the task I signed up
for. I was in a strange country, completely cut off from my family.
And I wanted my mother.
After Mom had been diagnosed in April 2007, I telephoned her every
day, like I had before she got sick, but getting her to talk became a
struggle. She seemed far away already. It got to the point where I
dreaded calling, because I didn’t know what to say and she didn’t
either. For the first time, there were uncomfortable stretches on the
phone that we didn't know how to fill. I felt shut out of her life. I
didn’t know whether to be a cheerleader or listener. I asked her
once, what she wanted. "I don't know,” she said. "Just be
there."
She seemed to be tolerating the radiation treatments well, so it was
a surprise when she had to be admitted repeatedly to the hospital,
once for dehydration, twice for blood clots in her legs. The last
time she was admitted, her legs were so swollen she was nearly
paralyzed from the waist down. Those heavy puffed-up legs were
especially difficult for her to cope with because she’d always been
self-conscious of having chubby legs, and never wore shorts.
Until this point I had lived in complete denial. We lived an hour
apart, close enough for me to help in a crisis, but far enough away
that I was shielded from the day-to-day realities of her treatment. I
would have these rare moments of clarity when the implications of her
illness would hit me and I’d fall apart, but most of the time I
went on with my life, totally unable even to conceive of a world
without her. It was easier that way.
To address the clots, her doctor inserted a stent. He talked about
her going home, but she didn’t want to leave the hospital. I think
she must have known what I refused to accept.
That afternoon, I took the doctor aside to ask, “What now?”
He looked me straight in the eye. “This is it. It’s over.”
Numb, I returned to her bedside, told her what a wonderful mother
she was, but she turned away. “Leave me alone,” she said. “I
don’t have the energy to talk to you right now.”
The next day she was released to hospice care at home, where I
stayed for the next five days. It was astonishing how quickly she
deteriorated. This fiercely private woman let me feed her and hold
her while she used the toilet. My brother said later that he felt
privileged to have been there, part of her inner circle. She refused
to see my husband, my brother’s wife, or even the grandchildren. "I
don't want them to see me this way."
One
day, she struggled to put a pill in her mouth and kept dropping it.
“Damn it, what’s wrong with me!”
In
that moment of frustration, I caught a glimpse of her spirit, as
strong as ever, trapped inside. I’d always struggled with my
beliefs of the afterlife. But now I was convinced that her soul
wouldn’t just die with her body. It had to go somewhere.
Mom’s
legs bothered her, so I did what I could to ease the discomfort,
rubbing them, covering them with damp cloths when they burned from
lack of oxygen. Hour by hour, it seemed, the purple crept under the
skin from her toes, over her feet and up her ankles, like a
shadow—like death. If I could just stop it from spreading—make it
go away—I could save her.
"Put
socks on her feet," the hospice nurse suggested.
I
did, hoping it would help, knowing deep inside that the socks were
for my benefit, so I wouldn’t have to look at my mom’s feet
anymore. I never realized that hospice was as much involved with
helping the family let go as caring for the patient.
“We
don’t know how to die anymore,” another nurse told me. We started
out hating the nurses, ended up loving them.
I
administered morphine every four hours, and when the drug wore off,
Mom would come around. She was sometimes alert, mostly incoherent,
looking at something in the distance only she could see. Overnight,
my brother and stepfather slept on the couch and loveseat. Both
snored so loudly that I couldn’t have drifted off had I wanted to.
Sometime in the night, my brother woke up, glared across the room at
my stepfather for making so much noise and fell back asleep. Ten
minutes later, it was my stepfather's turn to wake up and complain,
“Could your brother snore any louder?”
Near
dawn, Mom sat up asking for a dictionary. My heart beat rabbit-fast
as I took the stairs two at a time to the office upstairs to scan the
shelves. What are you doing?! All I could think of was her
downstairs, trying to get out of bed and falling. Grabbing a book at
random, I brought it to her. “What do you want me to look up?”
By
then she couldn’t remember. She started to get agitated; I
panicked. I could have woken my brother and stepfather, but that
would just add to the turmoil.
“I
forgot…” she moaned. I couldn’t make out the rest. What did
the nurse say? I tried to remember, something about just
reassuring her.
“No
you didn’t,” I said. “You took care of everything.”
“It’s
my fault…all my fault.”
“No,
no. It's okay.”
I
started her on morphine around the clock after that, which kept her
in a constant twilight state. I felt like a coward, because I could
not say if medicating her was for her benefit or mine, even though
the nurses had urged us never to let the morphine wear off. Fluid had
filled her lungs, she was suffocating, and the drug helped her relax.
We'd resisted, so desperate for those rare moments between doses,
when she was Mom again and could speak to us.
Every
time I squirted the drug into her half-open mouth, it felt like an
assault. I told myself that if the roles were reversed, if I were
lying there, I would trust her to do this for me.
The last
twenty-four hours were quiet, long-drawn-out. I watched her suffer,
helpless to relieve it. We listened to the soundtrack from the movie,
Somewhere in Time. My brother went home to his family. My
stepfather made final arrangements. The hospice nurse bathed her,
changed her bed linens, called her "Miss Sue." Her
breathing, though quick and shallow, was calmer, because she wasn’t
panicking anymore about the lack of air. But her body was strained,
her back arched and her arms straight. She still fought. I painted
her toenails, held her hand. When had I ever been this close to her?
Been aware of her every breath and heartbeat?
She died on a
Tuesday morning. I was on the phone in another room, talking to my
husband. I felt a change. It was so slight.
I knew without
looking she was gone.
They say that there
is no such thing as time in Heaven. That final week with Mom, it felt
like some of the timelessness of Heaven had leaked in, surrounding
us. Time passed so slowly. As soon as she was gone, time sped up
again, to catch us up to the rest of the world, which had been going
on the whole time.
At
first, it had been a relief to go to Russia, to outrun grief for a
while, to live in the moment and forget about everything. But after
the surprise of Dima's hug, the bleak apartment buildings and the
disastrous evening with the graduates, sorrow overwhelmed me, and I
felt as helpless as I had the last days of my mother's life.
"It's okay," Carol said kindly when she walked into our
room. "It gets to everyone."
The
next day we took the children from the orphanage to the zoo. Dima
saved a seat for me on the bus and held my hand. What a strange, sad
little zoo, with its ramshackle cages and outbuildings, and junk
strewn around, including an old rusty van. Despite the zoo's
neglected appearance, it had two tigers, three bears and a lion. The
kids loved it; most had never been to a zoo before.
Back
at the orphanage, we played monkey in the middle in the hallway, and
decorated t-shirts. I found out that Dima's favorite toys were
Matchbox cars, but that these inevitably ended up stolen or hoarded
by other children. My sons had dozens of toy cars to play with and
this Russian child did not have even one!
The
next four days passed in a whirlwind of activity, with no time to
think about Mom, or life back home. We had "spa" day for
the girls, turning the common room into a beauty parlor with make-up,
nail polish and hair accessories. As expected, the girls loved it,
and I found it much easier to talk to them while styling their hair
in an elegant up-do. We also decorated keepsake boxes and picture
frames, had sing-alongs, indoor scavenger hunts, and a board game
challenge. To every child we handed out backpacks filled with school
supplies, slippers and new pajamas that had been donated by members
of our church. As the week went on, I found myself growing attached
not only to Dima, but to two teenage girls—Sveta and Katya—who
could not have been more different. Fourteen-year-old Sveta was
slender, with brown hair and eyes, and a quiet, shy manner. Katya was
a year younger and stockier, blonde and blue-eyed, and as rough and
tumble—and belligerent—as the boys. Before coming to Orphanage #1
two months before, she had lived on the streets.
For
many days the children had been rehearsing for an evening performance
in our honor, and the team had organized a full day's "carnival"
activities leading up to it, including face painting. For two hours,
Olga and I decorated faces with butterflies and flowers, and for the
majority of boys, red and black Batman style masks around the eyes.
When it was Katya's turn, she demanded a Batman face, too, but
eventually chose cat's eyes and whiskers.
The
orphanage caretakers were annoyed with us. Here, the children were
supposed to be on stage later that evening, dressed in their best,
performing traditional dances, and we had decorated their faces! Any
child they could get their hands on was scrubbed clean. I felt bad,
until later that night, when a gang of little boys in black vests and
Batman faces took the stage for a polka. It was a magical evening
that brought the entire team to tears.
We
only had two hours with the children the next day before leaving for
Moscow. Although we were discouraged from singling out children and
giving them gifts, I did manage to smuggle Dima some Matchbox cars
I'd bought at the B-mart. "Be a good boy," I told him.
"Study hard in school."
The
girls—Sveta and Katya—stayed by my side, posing for photographs
until it was time to go. Without thinking, I took off the ring and
heart necklace I was wearing—gifts from Mom—and gave them to the
girls. To see Katya—that tough cookie from the streets—sobbing
uncontrollably broke my heart.
"Duh
svee-dah-nee-ye," I said, hugging her one last time. "Do
svidaniya. Goodbye."
Don't
look back, I told myself as we pulled away. Russ, Carol, Jan—they
were all crying, too—and I thought, How can they bear this over
and over again?
During
the long drive back to Moscow, and the flight home, I ached inside,
knowing I would probably never see Dima, Katya or Sveta again. At the
same time I felt replenished, uplifted in spirit, as if my heart was
knitting back together.
"Funny
how I go there to help the children," Carol told me. "But I
end up receiving so much from them."
There are lessons we cannot learn without loss. Joys we cannot
experience without pain. Grief that hurts and heals at the same time.
I'll never forget the suffering I saw during my mother's last
days—nothing can erase those images entirely from my mind—but
there were also moments of grace. The soft way the light came through
the windows at the end of the day. The tranquil, quiet moments we had
together. How time—and the world—seemed to stand still.